@ouch_mouse

Happy rare disease day! I have 3 of them... Cold Urticaria ❄️, Visual Snow Syndrome 🍊, and Ehlers-Danlos Syndrome 🦓 A lot of people use today to raise awareness of their rare disease, but for me that’s too much to put into one Instagram post, so I’m choosing to use today to celebrate them. I wouldn’t be who I am today if my life hadn’t played out exactly as it has, and who I am makes me very happy ✨ . . [Image description: a selfie of Max taken in their bathroom mirror. They are wearing a grey jumper that says “there is no right or wrong way to be deaf”, orange tinted glasses, and hearing aids. Their hair is in a bun and they are making the ASL I love you hand shape] . . #rarediseaseday #raredisease #rarediseaseawareness #rarediseaseday2021 #coldurticaria #coldurticariaawareness #allergictocold #visualsnow #visualsnowsyndrome #visualsnowawareness #visualsnowinitiative #visualsnowsupport #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #ehlersdanlossyndromeawareness #hypermobileehlersdanlossyndrome #eds #edsawareness #heds #deaf #deafawareness #deafblind #deafblindness #deafblindawareness #visuallyimpaired #visualimpairment #imagedescription #cripplepunk #accessibility