@bowelbabe

Another day, brings another excuse to spend half of it exhausting myself getting dressed up to go to one of my favourite places!!!! @glyndebourne to watch #laboheme - But totally worth it. Thank you @glyndebourne for being so lovely and welcoming tonight -doing all this in a wheelchair is certainly a new challenge to learn! : I can’t believe I was last here 5 years ago this week - scared, newly diagnosed, just trying to do the same as I’m doing now - taking things one day at a time!! (See stories) : Anyone that’s followed me for years knows that the British season is my favourite time of the year hence why all my @inthestyle dresses are named after events!! So I figured My aim is just try to fit in a few whilst I’m still kicking around and am able to! : But be under no illusion! I’m knackered! I’ve worked out it takes me longer to get ready and organised to go than the time I actually last anywhere!! Getting dressed is tiring, getting meds organised is tiring, the extra moving, the travel, the wondering what mood your stomach is in - its all real! But then the feeling of making it to something you didn’t think possible, having put make up on, donning new shoes (that finally arrived in the right size for massively swollen feet!), with the sunshine smiling - well then it’s all worth it! It’s a kind of cheeky “still living whilst dying” two fingers up to it all!! : Have a good weekend all xxxxx : #stillrocking #aintdeadyet #onedayatatime